So Let the Pitty Party begin....
Not like anybody is going to read this, but here is my attempt at explaining why camming is my JOB, and why I cannot have a normal job.
I do wish that just because I am releasing this info, doesn't mean that I'm going to be treated like some poor girl, no. You are still going to respect me and I still AM going to be treated like a NORMAL human.
Hydrocephalus is Latin for water on the brain. It simply means that my body can't drain cerebra spinal fluid properly, so I have an internal tube (called a shunt) doing it for me. My shunt also has a magnetic part that controls the flow of how much or how little, and the pressures in my head.
Along with this wonderful contraption in my head, I get massive headaches, head pains, migraines (whatever you wish to call them, point is IT HURTS LIKE A BITCH) Sometimes, I get in SO much pain, I cannot even leave my house, let alone my bed.
Camming can be done out of my home, I don't have to strain myself to get what I need to done, like clean. That being said, also runs into the fact why I don't live alone. To the point that sometimes I can't take care of myself, it's how I have to live, I will adapt.
Truth is: over 60% of k**s with Hydrocephalus will never be totally independent as an adult
NOW to prevent any further pity party ness, I'll stop there. If there is more interest, I'll add how I developed it, for now, it seems unnecessary.
CAN IT BE CURED?!
No, science hasn't got that far yet, I do hope it does in the future :) Or pain treatments become better.
WHAT CAN BE DONE/ WHAT DO I DO?
Get doped up on pain pills! uhhh ! Pain pills actually do not touch this pain unless I take 3-4 times the dose. I really frown upon needing pills to manage my life, for others it may be needed, but not for me.
I have/am trying to build up immunity to the head pain, or any others that may come my way.
I do try natural remedy's such as White Flower, yes you will find some on my Amazon.. Get some for yourself, it's like Vicks on steroids, it works!
CAFFEINE: Many, if not all of you, have seen me with my bottle of soda, or cup of coffee. I do not drink this solely for personal pleasure. It actually helps me manage/ reduce my pain levels.
So please stop telling me that's why I'm gaining weight and that I should stop, there is a reason for it.
I do wish that just because I am releasing this info, doesn't mean that I'm going to be treated like some poor girl, no. You are still going to respect me and I still AM going to be treated like a NORMAL human.
Hydrocephalus is Latin for water on the brain. It simply means that my body can't drain cerebra spinal fluid properly, so I have an internal tube (called a shunt) doing it for me. My shunt also has a magnetic part that controls the flow of how much or how little, and the pressures in my head.
Along with this wonderful contraption in my head, I get massive headaches, head pains, migraines (whatever you wish to call them, point is IT HURTS LIKE A BITCH) Sometimes, I get in SO much pain, I cannot even leave my house, let alone my bed.
Camming can be done out of my home, I don't have to strain myself to get what I need to done, like clean. That being said, also runs into the fact why I don't live alone. To the point that sometimes I can't take care of myself, it's how I have to live, I will adapt.
Truth is: over 60% of k**s with Hydrocephalus will never be totally independent as an adult
NOW to prevent any further pity party ness, I'll stop there. If there is more interest, I'll add how I developed it, for now, it seems unnecessary.
CAN IT BE CURED?!
No, science hasn't got that far yet, I do hope it does in the future :) Or pain treatments become better.
WHAT CAN BE DONE/ WHAT DO I DO?
Get doped up on pain pills! uhhh ! Pain pills actually do not touch this pain unless I take 3-4 times the dose. I really frown upon needing pills to manage my life, for others it may be needed, but not for me.
I have/am trying to build up immunity to the head pain, or any others that may come my way.
I do try natural remedy's such as White Flower, yes you will find some on my Amazon.. Get some for yourself, it's like Vicks on steroids, it works!
CAFFEINE: Many, if not all of you, have seen me with my bottle of soda, or cup of coffee. I do not drink this solely for personal pleasure. It actually helps me manage/ reduce my pain levels.
So please stop telling me that's why I'm gaining weight and that I should stop, there is a reason for it.
13年前
